Friday, July 29, 2011

The Results are In

Hannah had her EEG this morning to rule out seizure activity once and for all. SHe had to be sleep deprived for the study so I had to wake her up at 4am and force her to stay awake until the EEG at 7am. This was not easy. FYI she normally sleeps until 7:30. 6 months ago when I was praying she would sleep through the night, I would have never guessed that I would be trying to keep her awake at 4 am just months later. Regardless, we made it through. Hannah was exhausted and so was I. I had to sing many songs, clap, shake her arms, dance around, do an obnoxious amount of animal noises, basically whatever it took to keep her awake. The most difficult part was definitely the car ride to the doctor's office because she was already so tired and the car always puts her to sleep. My clapping wasn't working so I had to keep rattling the car seat. We made it to our appointment at 6:30am and met the technician. No, she still couldn't sleep. First she had to lie on a table very still while the tech drew on her head with a pink highlighter and attached 26 individual electrodes. SIde note: when the Dr. measured Hannah's head he said "she has a good size head." He was so taken by it's size he proceeded to measure mine and Tim's heads to get to the bottom of who's genetic makeup it was. I lightheartedly share that my head is normal and TIm's is large and above the 90%. Like father, like daughter. Hannah was absolutely amazing the whole study. Despite being tired she didn't cry and lied perfectly on the table. The Doctor said a lot of kids have to be sedated because they pull the electrodes off, but not Hannah. She just held her lovie and looked straight at her mommy. THe tech said she was the easiest baby she has ever done an EEG on. And if 26 wires dangling from her head wasn't enough, then they wrapped her whole head and under her chin in a white cloth. Only her little eyes, nose and mouth could be seen. It was really sad, but she kinda looked cute. In fact the tech recommended a mummy for a Halloween costume. I know so many kids can't stand to even wear a hat and Hannah was a champ through it all. Finally the study began starting with a bright strobe light in an attempt to provoke a seizure. Finally, I was able to give Hannah a bottle and put her to sleep on the table. I have been so worried about her because I just couldn't bear it if anything else was wrong with Hannah. She is too sweet to have any more issues to deal with. Well, the call just came in from the neurologist and he said her brain waves look NORMAL! He said that unless they get worse (which he is not expecting) then they are benign motor movements that will eventually go away once the nervous system develops more fully. I am so happy and while I still don't like seeing her have the movements I feel like I can rest more easily knowing we did the scan.

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